What happened?
I was born like that. That’s the way God made me.
Does it hurt?
Not at all.
Do you have feeling with your nubs?
Yes, there are tiny veins inside them. They have feelings just like your fingers do.
Will your fingers ever grow?
Nope they will always stay the same as far as I know. But my hand will grow. Not like a regular hand but it will grow as I grow.
Will your hand ever get better?
No because there is nothing wrong with it.
Haylee! You are so special. I am so proud to say you are my niece. You really do have such a big heart. Im glad you liked to see your cousin ethan! Your uncle and i love you very much! Keep on making the best of life because we only have one life to live. And you are doing an amazing job living it up!
I know how special you are and how LOVED you are….you amaze me continously….
Haylee you never cease to amaze me. Thank you Thank you and Thank you To your parents and family, I know without a doubt they are Proud of you.
My son Tre is almost 3 years old and has ABS and children are always asking us these questions as well.
thank you for sharing with us.
Thank you so much for sharing. My little guy and I get the exact same questions and at 5 years old, he is beginning to ask questions as well. Websites such as yours help me tremendously.
Love your answers to these questions. I always encourage my kids and others to ask questions rather than just stare and wonder. ((hugs)) You are making such a difference in so many lives I’ll bet you’ll never know how many.
Hi Haylee. I just wanted to say those are all the same exact questions I was asked as a child and still do sometimes as a adult. My hand looks just like yours except my nubs were removed around 10 months old, do to sensitivity. I am now 29yrs old and work with those with disabilities. It is nice to know i am not alone. For years the doctors and even my specialist for my hand never had a actual name for it. I refused any prosthetics for my hand as a child and even now. I am fine with what I have, I been to College, I drive, Work and do all the things anyone else can do just with some limits and I know you will go far in life…GO HAYLEE!!!
Hello Haylee,
My name is Jennifer. I’m 35 years old and a mommy to two very beautiful kids. I was born with the exact same hand as yours, nubs and all! It sounds like you are doing an awesome job with what God gave you. It was hard growing up, kids didn’t understand, but I think as long as you are willing to talk about it to others the more they will understand. I know sometimes things will seem hard but know that you are special the way you are. I was a dancer and a singer in my high school choir and even did a musical! Im currently a Daisy Girl Scout Leader. There are no limits to what you can do! Know You are not alone. There are lots of us out here who have been there. And continue to live life to the fullest everyday! Take care, you will be extraordinary!
Thank you so much… I love hearing that I am not alone. ~ Haylee