Haylee has Nubs. Nubs are just one form of ABS. Nubs happen when the growth of fingers is stopped at an early stage of development. Some children have small nubs like Haylee and other children have longer nubs.

So just because we have one hand, two hands or no hands does not mean we can all tie shoes the same.  Nan did an amazing blog post with a video that I want to share with you.

Sometimes things can be so difficult for little Bug.  We’ve tried for months to teach little Bug how to lace a shoe with a cardboard cutout, lacing cards even tennis shoes but with no luck.  This summer Bug took OT and his instructor loaned us a teaching tool that made all the difference in the world. He learned to lace his shoe in 3 days. Yes, can you believe it, 3 days! I was blown away and he was so proud of himself.  We are still working on the bow tying but we got half of it down so we are both so proud.  Just look at him go.

That is just a snippet.  If you want to read the whole thing and watch Bug tie his shoes and My BFF help her son then head on over to A Mom Blog and check it out.  She even gives the link to that amazing shoe that helped Bug learn to tie his shoes.  OH and….

WAY TO GO BUG!  WE ARE SUPER PROUD OF YOU.

We are setting up a store for Little Hand Big Heart.  Here is a sneak peek of what we have so far.  http://www.cafepress.com/lhbh .  Haylee decided that half of everything she is going to make is going to go to Shriners.  I mean seriously, this little one of mine is 7 years old and she is donating half of everything she makes back to a wonderful resource.  So I asked her what she was going to do with the other half.  Well that lead to a great call with a wonderful person who suggested a vision board.

Haylee and I created the vision board and are only about half done with it but everything on her vision board is about giving back.  She wants to Meet Darin (Darin, You were top of her list), she wants to take her uncle Dave snorkeling, she wants to write a book, she wants to make gift baskets and send them to any moms that are pregnant or have newborns that were effected with Amniotic Band Syndrome, she wants to travel the world and speak to people about living with a little hand.  And this is only half of all the things she wants to do.

Can you believe a little girl can have such a big heart?