Keeping it warm and having fun
May 15, 2012 By Leave a Comment
Because Haylee was born with nubs on her left hand instead of fingers we have had a few challenges with that hand. Some challenges are very serious. But others we try and make as much fun as possible. We never let Amniotic Band Syndrome get us down!
One of the issues that we have found is keeping that little hand of hers warm. Because she does not have fingers to always move on that hand then the circulation is not as good as it should be.
Often times her little hand will get cold or even worse it will start to turn purple. Normally we put on a sock that we got when she had flower her prosthetic hand. But a little hand sock is ok but Haylee wanted something cooler and more fun.
Well one day she came home from school with a cell phone cover that looked like a hoodie. And she had me open up the bottom so that she could slip it over her little hand. That was fun and cool but now we need different colors and more fun.
So I found someone on etsy that knitted and asked her to make us some sweaters for Haylee’s little hand. And I have to tell you it is such an awesome and fun way for Haylee to keep her little hand warm but super stylish.
If you have a little hand and want a sweater let me know and we would be happy to send you one too.
Just click on the contact form and send us an email.
Sometimes they just need to snuggle…
November 30, 2011 By 1 Comment
Amniotic Band has caused us to have lots of ups but we still do have a few downs. Times when we just need to snuggle and remind our kids they are perfect no matter what other people say. But there are also times when a word or a look can really hurt our kids feelings.
I have to admit Haylee has a pretty tough skin. People can stare at her and make comments and normally it just bounces right off or she comments about it we talk about it and then it is done. But there are other times when even the smallest thing really gets to her. Amniotic Band Syndrome make her skin as tough as it is because she does look different but that tough skin does not mean that her feelings don’t get hurt just like everyone elses.
I can normally tell when something is bothering her. Either she will just come out and say what is on her mind or she ends up going into her own world. And when she is in her own world I need to give her space until she is ready to snuggle.
One thing I have learned from Haylee is that sometimes she just needs to snuggle and pretend that she is normal like any other two handed child. She knows that she has no fingers but sometimes in her own little world she pretends she does have two hands.
Recently her and I were talking about her little hand and she said to me, “Mom why do you wish you had a little hand?” I said, “Because it is so cute and cool.” She said, ” Mom I wish for just one day I could have two hands to see what it feels like to have two hands. I don’t want it for every just one day.” It broke my heart to hear her say that. And that was a snuggle time when I knew that no matter what I said it did not matter that she just needed some extra love.
Don’t get me wrong these conversations are few and far between and half the time as soon as it comes out her mouth it is done but these conversations still come up and it is at that time that I have to just remind her that we love her just the way she is and that God made her that way for a reason. A very special reason.
Halloween Fun with a Little Hand
November 4, 2011 By Leave a Comment
Well as always Halloween was a great time. Haylee has always loved Halloween because of the candy. But she also loves it because it is the one time of the year where she can dress up and be anyone she wants to be.
This year she dressed up as a blood vampiress.. She was super cute and brought home a ton of candy.
Haylee has also adapted very well to carrying her trick or treat basket on her little hand so that she can get candy with her big hand. The only little problem we had this year was her little hand got a little cold.
How was your Halloween?
Amniotic Bands give you so much more
May 14, 2011 By Leave a Comment
Once we become amniotic band moms, dads, or family members our lives change. Amniotic Bands did more than just effect our children. These band brought us to a whole new extended family.
Remember when you first found out about ABS? Remember feeling all alone? Well once you realize that everything is going to be ok and find that there is a support system out there for not only our children effect by Amniotic Bands but also their families a whole new sense of things will be ok comes over you. Realizing there is support for ABS makes you relax a little and also eases your mind knowing there is someone out there that can answer questions when you have them.
Finding out our children have been effected by Amniotic Bands does not have to be a scary thing. The more awareness we can bring to abs the less people are going to be scared when they find out there children are going to be effected by Amniotic Bands.
So let’s make this world aware of Amniotic Band Syndrome one child at a time. Let’s support each other and shout from the roof tops. ABS is not scary because we are here to support you.
A Little Hand, but a Big Heart
July 10, 2009 By 1 Comment
You know we all say great and wonderful things about our kids but I have to take a minute to brag about mine. Haylee as most of you know was born with a little hand but has a heart of gold. I often wonder just how big her heart truly is. God truly sent me an angel from above.
We are setting up a store for Little Hand Big Heart. Here is a sneak peek of what we have so far. http://www.cafepress.com/lhbh . Haylee decided that half of everything she is going to make is going to go to Shriners. I mean seriously, this little one of mine is 7 years old and she is donating half of everything she makes back to a wonderful resource. So I asked her what she was going to do with the other half. Well that lead to a great call with a wonderful person who suggested a vision board.
Haylee and I created the vision board and are only about half done with it but everything on her vision board is about giving back. She wants to Meet Darin (Darin, You were top of her list), she wants to take her uncle Dave snorkeling, she wants to write a book, she wants to make gift baskets and send them to any moms that are pregnant or have newborns that were effected with Amniotic Band Syndrome, she wants to travel the world and speak to people about living with a little hand. And this is only half of all the things she wants to do.
Can you believe a little girl can have such a big heart?
