How other children react to a little hand

SS850008Amniotic Band Syndrome effects everyone a little different.  Not every child will have a little hand. Not every child will have nubbs. Not every child will even have their hands effected.  Some will have their feet effected.  Some will loose their whole or half arm or leg. But, no matter how they are effect there will be something that makes them look different.

The average adult will look, wonder what is wrong or how they got that way but never ask.  But not those sweet young children.  They will walk right up, touch it, feel it and ask why don’t you have fingers? What Happen?

We ran into the most precious thing this last Sunday.  We were at church and during service the minister called all the children up for Children’s sermon.  All the children went up and sat down. Haylee sat down on the steps and a young boy, probably about 2 maybe three, came and sat down next to Haylee.

At first he did not notice her hand.  Which actually happens alot.  But then after a couple minutes Haylee moved her hands around and he noticed.  Be began to hold her hand.  Touch her fingers and just softly play with her hand.

Haylee is a very patient person and a very kind and compationate person.  He let the little boy look touch and feel her little hand.  The whole time he was doing this Haylee did not frown or get upset.  Instead she sat up there with the biggest smile you had ever seen.

It brought tears to my eyes to see not only this young courious boy up there checking things out but to also see Haylee up there not being upset but rather letting the boy explore and figure things out.

I signed to Haylee good job.  I wanted her to know right then and there just how proud I was of her and what an awesome job she was doing.

We don’t mind if you ask us what happen.  Actually we prefer it over staring.  We want to tell everyone about ABS and how it has not only effected us but how it has blessed our lives and  made us the people we are today.

Sometimes I Forget

Sometimes I forget she was born with a little handNow that Haylee is seven and we have been living with Haylee’s little hand and her limb deficiency due to Amniotic Band Syndrome I sometimes forget that my daughter is not like  other kids. I forget that there are only five fingers and not ten.  Now before you think I am strange you need to hear me out.

When Haylee was first born and they that my daughter had a little hand, I had no idea what they were talking about and the first time I heard the words Amniotic Band Syndrome I was like what?!?!  All I could think about was how my daughter was missing five fingers.  But the very second I seen Haylee for the first time.  I forgot about it all.  All I could see was the most perfect baby in the world.  There she was with toes and fingers (notice I did not say 10 toes or 10 fingers, you don’t have to have fingers, toes, arms or legs for that matter to be perfect in my eyes or in Gods eyes) and a smile that lite up the room.  Yah I know it was just gas but it was still beautiful.

As time went on with Haylee I started to instead of feeling sorry for us I started on ok what do I need to do to adapt to this situation.  Obviously God gave me this wonderful gift from Heaven so adapt.  I began figuring out how I could get her to hold things in that hand.  How I could get her to shake a rattle in that hand.  I began figuring all this out.

But as the years pass she has adapted so well that I often forget that Haylee was born with out fingers on her left hand.  I forget she has that little hand.  I forget that it was an amniotic band that caused her nubbs.  I forget in a wonderful way because just like you and I do, Haylee adapts to situations also.

Smile Big

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