Little Hand Big Heart » Little Hand Big Heart

Barbie Photo Shoot ~ Wordless Wednesday

Tricia — Wed, 28 Jul 2010 13:46:12 +0000

Haylee took this herself during the barbie photo shoot!

Amniotic Band Syndrome is all about the attitude

Tricia — Thu, 22 Jul 2010 12:15:59 +0000

Amniotic Band Syndrome can drain a person if you don’t have the right knowledge and attitude about it. We have had a lot of people ask us how we are so positive about Haylee being born without fingers due to Amniotic Band Syndrome. And there is only one answer. It all starts Faith and knowledge.

When Haylee was first born and I had found out that the cause of her little hand was due to Amniotic Band Syndrome I was a wreck, emotionally, physically, mentally and spiritually. The first thing that would of helped was if the hospital would of been able to give us some knowledge or information about ABS. But nothing. So I prayed. I prayed that God would show me the way and guide me to knowledge and support.

Since that day I have been filled with knowledge about ABS, I have been overwhelmed with new friends that have children or are themselves effected by ABS. God did show me the way and has been helping us make people aware of Amniotic Band Syndrome one little hand at a time..

We are very positive and upbeat with Haylee about her ABS and I share all information possible with Haylee about ABS, about this site and about people that contact us due to Amniotic Band Syndrome. But there are still day where having a little hand totally drains her. There are days that she is so frustrated that she wants to scream. And there are days that she does scream about it. But then we sit down and talk about it. We talk about what we can do to make things better. How we can fix whatever has made her so upset. And that God has made her special for a reason. Not to get upset over it but to share our frustrations and accomplishments with the world so others with Little hands, no hands, club feet, missing limbs can learn from us and try what works best for us.

So yah some days dealing with Amniotic Band Syndrome and it’s many effects can be a total bummer, it can drain person to no extent. We still always remain positive, figure out what can make Haylee’s life a little easier and keep loving God and keep supporting our little angel.

Friday Faves

Tricia — Fri, 16 Jul 2010 12:04:55 +0000

We wanted to share with you our five favorite sites for this week. We are going to try and do this every week. IT is a mixture of sites between Haylee and I and ever week we are going to feature five new favorite sites.

Raising CEO Kids ~ Who would not want to raise CEO Kids…You can also find them on twitter @raisingceokids

Little Fin ~ Our newest find for a little hand (or fin). This mom is rocking as she blogs about her adventures with her sweet child that God made that way!

Foo Pets ~ Besides being fun, the entire FooPets experience is designed to be educational and help your child learn about responsible pet care. A FooPet makes the perfect “warm up pet” or “substitute pet” to make sure your child is ready for the real thing. A FooPet is a “real” virtual pet and will teach your child real world skills.

Webkinz ~ Ok I will tell the truth.. We both play on this site. You can also find them on twitter @webkinz

Parents Connect ~ This is an amazing site that has just about everything a parent would want or need. There are games, giveaways, advice, articles and much more all for parents by parents. You can also find them on twitter @parentsconnect

Family Fun in the Pool ~ Wordless Wednesday

Tricia — Wed, 14 Jul 2010 12:01:56 +0000

Tackling Those Little Things

Tricia — Tue, 13 Jul 2010 17:50:17 +0000

There are so many things I could be doing or could be tackling but I just can’t ever seem to find where I have misplaces all those hours in the day I keep loosing. I could be tackling the house, or my office, or reading or…… You get the picture. There is just so much to do and so little time.

I am a bit backward than most people. A lot of people I know tackle the big things and then work their way down to the smaller things. But not me and not today. I have set aside my complete afternoon to tackle something very near and dear to my heart. This site.

I have been revamping this site for some time now and just when I think I am getting close to being done then something comes up and I just leave the site. So I literally blocked out all this afternoon to finish up the site and I am not going to let anything get in the way of it.

Here are my list of things I will be tackling today:

Finish Footer
Move subscribe newsletter box
contact people about guest blogging
add more people to blogroll
comment on 10 sites
Get new social media icons
connect my blog to facebook
connect my tweets to facebook
connect twitter to my blog
And I am sure there is more I will find as I continue working.

What are you going to be tackling today? Does not matter large or small I would love to hear what you are tackling!

Why do I always lose?

Tricia — Mon, 12 Jul 2010 21:06:09 +0000

I am busy working away in the office today with Haylee laying behind me playing a game on her DS. Every time she would win she would come up and tell me all about how she had won and would be super Happy about it. But then I heard the words, “How do I keep losing?” How many of us as adults have asked ourselves that a million times.

That being a hard question for an adult to explain to another adult imagine trying to explain it to your 8 year old. Yah you can say life is not always fair and you don’t always win. Or you can say we all lose things in our lives at one time or another. Or you could… Well you get the picture.

But how frustrating it must be to think that you always lose. That made me think about when Haylee was born and I found out that she has been effected by ABS. I am sure somewhere in my mind I thought. How come I always lose? What did I do to get the bad cards? All those emotions going through you head. Was it your fault, did you cause this, is God mad at you? There are a million different questions you ask yourself and a million different feelings you are feeling.

But really did you lose… Heck no.. You won. You won a precious gift that only a select few are given from God. So the next time you child says why do I always lose try turning that losing situation into a total wining situation. We need to teach them to be able to get over that feeling and go on. Not to l that feeling drag on and on and get them in the total dumps. Imagine what would of happened if I would of keep thinking negative about my sweet Haylee.

4th of July Facts, Fun and Safety

Tricia — Fri, 02 Jul 2010 12:49:32 +0000

Happy 4th of July…

This is probably one of our favorite holidays because you can have fun, remember how lucky we are to have independence and we always have a huge bash. So this year we were on the look out for some fun sheets and facts we could share with you about independence day and about how to be safe this holiday weekend. Below are links to some sweet places with tons of great information on being safe this holiday weekend but having fun.

4th of July Safety

Easy Quilt Cake

4th of July Party Ideas

4th of July Recipes

4th of July Crafts

4th of July Printables

4th of July Trivia

Too Cool for Words!

Tricia — Wed, 30 Jun 2010 20:25:57 +0000

Family Talk Interview About Amniotic Band Syndrome

Tricia — Wed, 30 Jun 2010 19:42:59 +0000

We were interviewed today by Dr. Daisy Sutherland. Daisy wanted to know all about ABS and how she could help.

Listen to internet radio with FamilyTalk on Blog Talk Radio

Amniotic Band Syndrome ~ So little Information

Tricia — Sun, 27 Jun 2010 15:17:18 +0000

Amniotic band syndrome affects 1 in 1,200 live births. And it is said to cause 178 in 10,000 miscarriages. And over half will involve the hands, fingers and club foot. But if you begin to try and dig deeper and find out more about Amniotic Band Syndrome there is nothing. We don’t know how many people effected with ABS go on to College and have families. We don’t know much of anything except for the hard facts.

This breaks my heart to know that there are so many people out there in the world that are effect by Amniotic Band Syndrome and there is really no where to turn. No support system. No community of people. Nothing like that.

It is time to make a change. It is time to make the world aware of Amniotic Band Syndrome but more importantly it is time to give these Moms, Dads, Families and Friends a place to go to get support. So that they no longer feel alone in the world. WE are not alone. We are many.. Many more then you would ever imagine.