Standing out in the crowd with Amniotic Band Syndrome
August 21, 2011 By 2 Comments
Amniotic band syndrome makes our kids stand out in a crowd. Even if they have been effected so very little that no one even notices they still stand out in a crowd from all the other kids. ABS effects each child differently. Physically and emotionally.
As most of you probably know we moved to a new town about 7 months ago and although Haylee did to go to school here for half a year she still has not made tons of friends and to be honest Jim and I have not made too many friends either.
So today I noticed as we were standing in line at a buffet Haylee began to hid her hand and cover it up. This confused me and puzzled me for a minute until we were able to get to the table and talk about it. I asked Haylee why are you hiding your hand? She said everyone was staring at me. I said no sweetie. This is a small town and our whole family is new. They were staring at Mom and Dad way more than you trying to figure out who we were and what we were doing there. You know how small towns are. She smiled right away and said oh yah I forget and the little hand came back out.
But I have to also remember that Haylee is going to be 10 years old soon and has become more worried about her appearance and what people think of her and also has become worried about fitting in and making friends. She is worried about standing out in the crowd since she has a little hand and no one else around here does.
I often times sort of forget about Haylee’s hand because it is so normal to me and I have to remember that she is different and she needs those extra special hugs and kisses to reassure her that everything is ok and that she is going to have the most amazing life imaginable.
So as our children grow older we have to continue to talk to them. Tell them how special and important they are. Tell the that standing out in a crowd is not always a bad thing but also a good thing too. Remind them that they are beautifully made and that God has huge plans for them.
Haylee Speaks Out About ABS
August 19, 2011 By 2 Comments
Haylee has a message to all ABS children and their parents. Something you want to watch. This is Haylee’s first video of many to come. Haylee did the recording, script and editing all by herself… Hope you love it.
Haylee tells ABS parents
August 16, 2011 By 1 Comment
So I asked Haylee if there was one thing that Haylee could tell parents of kids that have little hands or children born without hands or fingers due to Amniotic Band Syndrome what would it be?
“They can do everything everyone else can do… Except Monkey Bars!”
Summer Camp with Little Hand
August 14, 2011 By Leave a Comment
When Haylee was born with no fingers on her left hand due to Amniotic Band Syndrome one of my first thoughts was will Haylee be able to do all the things that other kids with two hands do? And since that day that I had thought thought God and Haylee just amazing me more and more every single day.
A couple weeks ago Haylee had a chance to go to summer camp with her cousin. And yes the Mom I am, I was a little concerned about what the other kids would say to her or how they would treat her. And you know what. There was no reason at all for me to be concerned.
First on the way to drop her off I reminded her that remember God made you with a little hand for a reason, and I went through the whole spill about how if people say something to her to not let it hurt her feelings too much because they just don’t understand and maybe have never seen something like that. And I went on and on and honestly I think she was probably like… Yah, yah mom whatever..
But when she came home and told me about the amazing time she had swimming, acting, singing, playing in a mud pit and praying. And I was the happiest Mom in the world.
We as parents always worry about our children getting their feelings hurt when it comes to other kids staring and saying things. But with that being said we have raised Haylee that she is just as normal as anyone else is out there.
One of the questions I asked Haylee when she got home was, “Was there anyone else with a hand or arm like yours?” and her answer was NOPE! And it was so cool Mom we did this and this and this. And just went right on telling me all about her camp. So she has just showed me that all my hard work of not making a big deal out of her little hand has paid off because her little hand is now not a big deal to her at all.
So the next time you wonder if your child can or can’t do something because of their little hand or nubs remember. They can do anything we can do but better because they do it with one hand, or one leg, or no fingers.
Amniotic Bands give you so much more
May 14, 2011 By Leave a Comment
Once we become amniotic band moms, dads, or family members our lives change. Amniotic Bands did more than just effect our children. These band brought us to a whole new extended family.
Remember when you first found out about ABS? Remember feeling all alone? Well once you realize that everything is going to be ok and find that there is a support system out there for not only our children effect by Amniotic Bands but also their families a whole new sense of things will be ok comes over you. Realizing there is support for ABS makes you relax a little and also eases your mind knowing there is someone out there that can answer questions when you have them.
Finding out our children have been effected by Amniotic Bands does not have to be a scary thing. The more awareness we can bring to abs the less people are going to be scared when they find out there children are going to be effected by Amniotic Bands.
So let’s make this world aware of Amniotic Band Syndrome one child at a time. Let’s support each other and shout from the roof tops. ABS is not scary because we are here to support you.
Amniotic Bands Photos????
March 27, 2011 By 4 Comments
Have you ever searched for the phrase Amniotic Bands Photos? Sometimes you will get some very beautiful pictures of children. But other times you get the exact opposite.
Now imagine being a pregnant mom and just found out that your child will be deformed or effected due to amniotic bands. You begin searching for photos of what you child might look like. And you find all those scary photos.
We, as Amniotic Band Syndrome parents, don’t want that! We want people to find beautiful amazing pictures of our children. We want those soon to be parents to see just how beautiful, amazing, gorgeous, and perfect their children will be even if they are affected by amniotic bands.
Below are just a few Amniotic Bands photos we want to share with you and populate the world with when searching for Amniotic Bands Photos.
Amnotic Bands are a blessing
March 9, 2011 By 2 Comments
When my daughter was born missing fingers due to amniotic bands I did not see it as a blessing. I seen my daughters deformity and blamed myself. I felt sorry for my daughter, I felt I was the cause of it.
I know better than anyone when you first find out your child will be or is born deformed due to amniotic bands, can do nothing more than think why. Why my child? Why me? Why, Why, Why? Or if you were like me your next thought after why was, what caused this and could I have done something different.
For a long time that was all I could focus on.
Amniotic bands
I had to learn anything and everything I could about amniotic bands:
- what they are
- what causes them
- what could I have done differently
- will my next child be born with them
- how bad are the effect
- on and on and on
I searched for hours and days on the Internet trying to find out anything and everything on my daughters deformity.
But quickly my focus changed as I grew more and more in love with my five fingered daughter. Amniotic bands may have taken my daughters five fingers but in their place God filled my life with many blessings.
Amniotic bands with Gods help gave me the most strong, amazing, beautiful daughter anyone could ever imagine. And each day I count my million blessings.
