Haylee hangs out with her favorite rock star Abisha, Lead singer of Sick of Sarah
Amniotic Band Syndrome is all about the attitude
July 22, 2010 By 2 Comments
Amniotic Band Syndrome can drain a person if you don’t have the right knowledge and attitude about it. We have had a lot of people ask us how we are so positive about Haylee being born without fingers due to Amniotic Band Syndrome. And there is only one answer. It all starts Faith and knowledge.
When Haylee was first born and I had found out that the cause of her little hand was due to Amniotic Band Syndrome I was a wreck, emotionally, physically, mentally and spiritually. The first thing that would of helped was if the hospital would of been able to give us some knowledge or information about ABS. But nothing. So I prayed. I prayed that God would show me the way and guide me to knowledge and support.
Since that day I have been filled with knowledge about ABS, I have been overwhelmed with new friends that have children or are themselves effected by ABS. God did show me the way and has been helping us make people aware of Amniotic Band Syndrome one little hand at a time..
We are very positive and upbeat with Haylee about her ABS and I share all information possible with Haylee about ABS, about this site and about people that contact us due to Amniotic Band Syndrome. But there are still day where having a little hand totally drains her. There are days that she is so frustrated that she wants to scream. And there are days that she does scream about it. But then we sit down and talk about it. We talk about what we can do to make things better. How we can fix whatever has made her so upset. And that God has made her special for a reason. Not to get upset over it but to share our frustrations and accomplishments with the world so others with Little hands, no hands, club feet, missing limbs can learn from us and try what works best for us.
So yah some days dealing with Amniotic Band Syndrome and it’s many effects can be a total bummer, it can drain person to no extent. We still always remain positive, figure out what can make Haylee’s life a little easier and keep loving God and keep supporting our little angel.
Tackling Those Little Things
July 13, 2010 By 1 Comment
There are so many things I could be doing or could be tackling but I just can’t ever seem to find where I have misplaces all those hours in the day I keep loosing. I could be tackling the house, or my office, or reading or…… You get the picture. There is just so much to do and so little time.
I am a bit backward than most people. A lot of people I know tackle the big things and then work their way down to the smaller things. But not me and not today. I have set aside my complete afternoon to tackle something very near and dear to my heart. This site.
I have been revamping this site for some time now and just when I think I am getting close to being done then something comes up and I just leave the site. So I literally blocked out all this afternoon to finish up the site and I am not going to let anything get in the way of it.
Here are my list of things I will be tackling today:
- Finish Footer
- Move subscribe newsletter box
- contact people about guest blogging
- add more people to blogroll
- comment on 10 sites
- Get new social media icons
- connect my blog to facebook
- connect my tweets to facebook
- connect twitter to my blog
- And I am sure there is more I will find as I continue working.
What are you going to be tackling today? Does not matter large or small I would love to hear what you are tackling!
Why do I always lose?
July 12, 2010 By 1 Comment
I am busy working away in the office today with Haylee laying behind me playing a game on her DS. Every time she would win she would come up and tell me all about how she had won and would be super Happy about it. But then I heard the words, “How do I keep losing?” How many of us as adults have asked ourselves that a million times.
That being a hard question for an adult to explain to another adult imagine trying to explain it to your 8 year old. Yah you can say life is not always fair and you don’t always win. Or you can say we all lose things in our lives at one time or another. Or you could… Well you get the picture.
But how frustrating it must be to think that you always lose. That made me think about when Haylee was born and I found out that she has been effected by ABS. I am sure somewhere in my mind I thought. How come I always lose? What did I do to get the bad cards? All those emotions going through you head. Was it your fault, did you cause this, is God mad at you? There are a million different questions you ask yourself and a million different feelings you are feeling.
But really did you lose… Heck no.. You won. You won a precious gift that only a select few are given from God. So the next time you child says why do I always lose try turning that losing situation into a total wining situation. We need to teach them to be able to get over that feeling and go on. Not to l that feeling drag on and on and get them in the total dumps. Imagine what would of happened if I would of keep thinking negative about my sweet Haylee.
4th of July Facts, Fun and Safety
July 2, 2010 By 1 Comment
Happy 4th of July…
This is probably one of our favorite holidays because you can have fun, remember how lucky we are to have independence and we always have a huge bash. So this year we were on the look out for some fun sheets and facts we could share with you about independence day and about how to be safe this holiday weekend. Below are links to some sweet places with tons of great information on being safe this holiday weekend but having fun.
Family Talk Interview About Amniotic Band Syndrome
June 30, 2010 By 1 Comment
We were interviewed today by Dr. Daisy Sutherland. Daisy wanted to know all about ABS and how she could help.
Listen to internet radio with FamilyTalk on Blog Talk Radio
Haylee Dancing with Sick of Sarah
June 16, 2010 By Leave a Comment
Haylee is dancing with Sick of SarahSad Little Monkey
June 10, 2010 By 2 Comments
I received the saddest call tonight. My little Haylee is spending a month with her Aunt and Uncle and cousins. And she has been gone for a little less then a week now and tonight she called me to tell me good night and she loves me. Just like we do every night before she goes to bed. Then I talked to my sister in law for a while and everything was fine.
I came down to the office to get some more things done and could hear the home phone ringing off the hook. Normally I don’t answer it.. (yah yah) But I text my SIL and asked if it was her calling. She said it is a Sad little Haylee.
SO Haylee called me and was crying. I MISS YOU MOM. Oh it was so hard not to cry myself. I miss the girl like crazy. We spend so much time together. Since Dad works second it is just Haylee and I at night so we pretty much do everything together. And now she is on the other end of the phone telling me how much she loves me and misses me and wants to come home… OH JUST STOP.. I wanted to jump in the car and drive down to get her.
But I help my cool and did not cry. I could hear in her voice just how tired she was. So I told her if she still felt that way on Friday, Mom and Dad would come and get her Saturday. But I can almost promise you that things will change and she will not be ready to come home.
It just tears at my heart strings to hear my baby cry and not be there to hold her in my arms and make the tears go away.
