Amniotic Band Syndrome can drain a person if you don’t have the right knowledge and attitude about it. We have had a lot of people ask us how we are so positive about Haylee being born without fingers due to Amniotic Band Syndrome. And there is only one answer. It all starts Faith and knowledge.
When Haylee was first born and I had found out that the cause of her little hand was due to Amniotic Band Syndrome I was a wreck, emotionally, physically, mentally and spiritually. The first thing that would of helped was if the hospital would of been able to give us some knowledge or information about ABS. But nothing. So I prayed. I prayed that God would show me the way and guide me to knowledge and support.
Since that day I have been filled with knowledge about ABS, I have been overwhelmed with new friends that have children or are themselves effected by ABS. God did show me the way and has been helping us make people aware of Amniotic Band Syndrome one little hand at a time..
We are very positive and upbeat with Haylee about her ABS and I share all information possible with Haylee about ABS, about this site and about people that contact us due to Amniotic Band Syndrome. But there are still day where having a little hand totally drains her. There are days that she is so frustrated that she wants to scream. And there are days that she does scream about it. But then we sit down and talk about it. We talk about what we can do to make things better. How we can fix whatever has made her so upset. And that God has made her special for a reason. Not to get upset over it but to share our frustrations and accomplishments with the world so others with Little hands, no hands, club feet, missing limbs can learn from us and try what works best for us.
So yah some days dealing with Amniotic Band Syndrome and it’s many effects can be a total bummer, it can drain person to no extent. We still always remain positive, figure out what can make Haylee’s life a little easier and keep loving God and keep supporting our little angel.
