Haylee has a message to all ABS children and their parents. Something you want to watch. This is Haylee’s first video of many to come. Haylee did the recording, script and editing all by herself… Hope you love it.
Haylee tells ABS parents
August 16, 2011 By 1 Comment
So I asked Haylee if there was one thing that Haylee could tell parents of kids that have little hands or children born without hands or fingers due to Amniotic Band Syndrome what would it be?
“They can do everything everyone else can do… Except Monkey Bars!”
Summer Camp with Little Hand
August 14, 2011 By Leave a Comment
When Haylee was born with no fingers on her left hand due to Amniotic Band Syndrome one of my first thoughts was will Haylee be able to do all the things that other kids with two hands do? And since that day that I had thought thought God and Haylee just amazing me more and more every single day.
A couple weeks ago Haylee had a chance to go to summer camp with her cousin. And yes the Mom I am, I was a little concerned about what the other kids would say to her or how they would treat her. And you know what. There was no reason at all for me to be concerned.
First on the way to drop her off I reminded her that remember God made you with a little hand for a reason, and I went through the whole spill about how if people say something to her to not let it hurt her feelings too much because they just don’t understand and maybe have never seen something like that. And I went on and on and honestly I think she was probably like… Yah, yah mom whatever..
But when she came home and told me about the amazing time she had swimming, acting, singing, playing in a mud pit and praying. And I was the happiest Mom in the world.
We as parents always worry about our children getting their feelings hurt when it comes to other kids staring and saying things. But with that being said we have raised Haylee that she is just as normal as anyone else is out there.
One of the questions I asked Haylee when she got home was, “Was there anyone else with a hand or arm like yours?” and her answer was NOPE! And it was so cool Mom we did this and this and this. And just went right on telling me all about her camp. So she has just showed me that all my hard work of not making a big deal out of her little hand has paid off because her little hand is now not a big deal to her at all.
So the next time you wonder if your child can or can’t do something because of their little hand or nubs remember. They can do anything we can do but better because they do it with one hand, or one leg, or no fingers.
Amniotic Bands give you so much more
May 14, 2011 By Leave a Comment
Once we become amniotic band moms, dads, or family members our lives change. Amniotic Bands did more than just effect our children. These band brought us to a whole new extended family.
Remember when you first found out about ABS? Remember feeling all alone? Well once you realize that everything is going to be ok and find that there is a support system out there for not only our children effect by Amniotic Bands but also their families a whole new sense of things will be ok comes over you. Realizing there is support for ABS makes you relax a little and also eases your mind knowing there is someone out there that can answer questions when you have them.
Finding out our children have been effected by Amniotic Bands does not have to be a scary thing. The more awareness we can bring to abs the less people are going to be scared when they find out there children are going to be effected by Amniotic Bands.
So let’s make this world aware of Amniotic Band Syndrome one child at a time. Let’s support each other and shout from the roof tops. ABS is not scary because we are here to support you.
Amniotic Bands Photos????
March 27, 2011 By 4 Comments
Have you ever searched for the phrase Amniotic Bands Photos? Sometimes you will get some very beautiful pictures of children. But other times you get the exact opposite.
Now imagine being a pregnant mom and just found out that your child will be deformed or effected due to amniotic bands. You begin searching for photos of what you child might look like. And you find all those scary photos.
We, as Amniotic Band Syndrome parents, don’t want that! We want people to find beautiful amazing pictures of our children. We want those soon to be parents to see just how beautiful, amazing, gorgeous, and perfect their children will be even if they are affected by amniotic bands.
Below are just a few Amniotic Bands photos we want to share with you and populate the world with when searching for Amniotic Bands Photos.
Amniotic Band Syndrome is all about the attitude
July 22, 2010 By 3 Comments
Amniotic Band Syndrome can drain a person if you don’t have the right knowledge and attitude about it. We have had a lot of people ask us how we are so positive about Haylee being born without fingers due to Amniotic Band Syndrome. And there is only one answer. It all starts Faith and knowledge.
When Haylee was first born and I had found out that the cause of her little hand was due to Amniotic Band Syndrome I was a wreck, emotionally, physically, mentally and spiritually. The first thing that would of helped was if the hospital would of been able to give us some knowledge or information about ABS. But nothing. So I prayed. I prayed that God would show me the way and guide me to knowledge and support.
Since that day I have been filled with knowledge about ABS, I have been overwhelmed with new friends that have children or are themselves effected by ABS. God did show me the way and has been helping us make people aware of Amniotic Band Syndrome one little hand at a time..
We are very positive and upbeat with Haylee about her ABS and I share all information possible with Haylee about ABS, about this site and about people that contact us due to Amniotic Band Syndrome. But there are still day where having a little hand totally drains her. There are days that she is so frustrated that she wants to scream. And there are days that she does scream about it. But then we sit down and talk about it. We talk about what we can do to make things better. How we can fix whatever has made her so upset. And that God has made her special for a reason. Not to get upset over it but to share our frustrations and accomplishments with the world so others with Little hands, no hands, club feet, missing limbs can learn from us and try what works best for us.
So yah some days dealing with Amniotic Band Syndrome and it’s many effects can be a total bummer, it can drain person to no extent. We still always remain positive, figure out what can make Haylee’s life a little easier and keep loving God and keep supporting our little angel.
Why do I always lose?
July 12, 2010 By 1 Comment
I am busy working away in the office today with Haylee laying behind me playing a game on her DS. Every time she would win she would come up and tell me all about how she had won and would be super Happy about it. But then I heard the words, “How do I keep losing?” How many of us as adults have asked ourselves that a million times.
That being a hard question for an adult to explain to another adult imagine trying to explain it to your 8 year old. Yah you can say life is not always fair and you don’t always win. Or you can say we all lose things in our lives at one time or another. Or you could… Well you get the picture.
But how frustrating it must be to think that you always lose. That made me think about when Haylee was born and I found out that she has been effected by ABS. I am sure somewhere in my mind I thought. How come I always lose? What did I do to get the bad cards? All those emotions going through you head. Was it your fault, did you cause this, is God mad at you? There are a million different questions you ask yourself and a million different feelings you are feeling.
But really did you lose… Heck no.. You won. You won a precious gift that only a select few are given from God. So the next time you child says why do I always lose try turning that losing situation into a total wining situation. We need to teach them to be able to get over that feeling and go on. Not to l that feeling drag on and on and get them in the total dumps. Imagine what would of happened if I would of keep thinking negative about my sweet Haylee.
Family Talk Interview About Amniotic Band Syndrome
June 30, 2010 By 1 Comment
We were interviewed today by Dr. Daisy Sutherland. Daisy wanted to know all about ABS and how she could help.
Listen to internet radio with FamilyTalk on Blog Talk Radio
