Amniotic Band Syndrome effects everyone a little different. Not every child will have a little hand. Not every child will have nubbs. Not every child will even have their hands effected. Some will have their feet effected. Some will loose their whole or half arm or leg. But, no matter how they are effect there will be something that makes them look different.
The average adult will look, wonder what is wrong or how they got that way but never ask. But not those sweet young children. They will walk right up, touch it, feel it and ask why don’t you have fingers? What Happen?
We ran into the most precious thing this last Sunday. We were at church and during service the minister called all the children up for Children’s sermon. All the children went up and sat down. Haylee sat down on the steps and a young boy, probably about 2 maybe three, came and sat down next to Haylee.
At first he did not notice her hand. Which actually happens alot. But then after a couple minutes Haylee moved her hands around and he noticed. Be began to hold her hand. Touch her fingers and just softly play with her hand.
Haylee is a very patient person and a very kind and compationate person. He let the little boy look touch and feel her little hand. The whole time he was doing this Haylee did not frown or get upset. Instead she sat up there with the biggest smile you had ever seen.
It brought tears to my eyes to see not only this young courious boy up there checking things out but to also see Haylee up there not being upset but rather letting the boy explore and figure things out.
I signed to Haylee good job. I wanted her to know right then and there just how proud I was of her and what an awesome job she was doing.
We don’t mind if you ask us what happen. Actually we prefer it over staring. We want to tell everyone about ABS and how it has not only effected us but how it has blessed our lives and made us the people we are today.
About Tricia
What a sweet story!!
I could not agree more. I much prefer it when people ask, rather than just stare. I have this paranoia that the people who don’t ask assume that I did something wrong to cause this. (It’s probably just my paranoia, but I can’t help it.)
My favorite story is my nephew. He was 7 when he first met my little one and he noticed right away. He looked at me and said “Aunt Jac, I didn’t know she was missing her fingers. But that’s ok, wanna know why?” Then he sat down and took of his shoe an socks and proudly showed his webbed toes to my six week old baby. He was so proud that they had something in common.