Keeping it warm and having fun

Because Haylee was born with nubs on her left hand instead of fingers we have had a few challenges with that hand. Some challenges are very serious. But others we try and make as much fun as possible. We never let Amniotic Band Syndrome get us down!

One of the issues that we have found is keeping that little hand of hers warm. Because she does not have fingers to always move on that hand then the circulation is not as good as it should be.

Often times her little hand will get cold or even worse it will start to turn purple. Normally we put on a sock that we got when she had flower her prosthetic hand. But a little hand sock is ok but Haylee wanted something cooler and more fun.

Well one day she came home from school with a cell phone cover that looked like a hoodie. And she had me open up the bottom so that she could slip it over her little hand. That was fun and cool but now we need different colors and more fun.

So I found someone on etsy that knitted and asked her to make us some sweaters for Haylee’s little hand. And I have to tell you it is such an awesome and fun way for Haylee to keep her little hand warm but super stylish.

If you have a little hand and want a sweater let me know and we would be happy to send you one too.

Just click on the contact form and send us an email.

Live Like No One Is Watching!!!!

I have to share this amazing video with you.

I belong to FTR Nation and they posted this video recently. And this video explains exactly what we have taught Haylee since she was very young.

With Haylee being born with no fingers on her left hand she always seems to have all eyes on her. And from a very young age we have taught her to live life like you dance. LIKE NO ONE IS WATCHING! And I will be honest. It has sure made her life more positive and upbeat. Haylee watched this video last night!  And Loved it!  Haylee was so mezmerized by the whole video but more importantly Carrie Dancing.  Haylee just zones on her dancing and said, “Mom I live my life like Carrie dances, like no one is watching.”  That brought tears to my eyes.  Thank you FTR Nation for affirming that this is how Haylee should continue to live! Love you guys!

Gavin we have a message for you

Well Haylee and I are always blog surfing and reading post of our favorite little friends.  Haylee and I were reading post at One Little Fin one night when we came acrossed a post called It’s Not Broken.  Where Gavin was upset with God because he thinks his arm is broken.  Haylee said right away she need to make Gavin a video so that is what we did.  This is to you Gavin and remember it is not broken.  Haylee said she will talk to you whenever you want or whenever you are sad.

How about a little 3D ~ Wordless Wednesday

Sometimes She Does Not Need to Say a Word

There are times in Haylee’s life when she does not have to say a word to express her feelings.  Amniotic Band Syndrome has left me speechless a few times and so I am sure there are times when Haylee is also at a lost of words.

Haylee is beginning to get her own personalality and really just finally becoming her own person. So as she put her hand up I had to snap a picture and wonder what is she thinking.  Does she wonder if animals are also born with little paws?  Does she even really think about her little hand or is it just so normal and natural now that she does not even really remember half the time.

A little bit after this picture was taken we were walking and a little girl noticed her hand and ran over to her Dad and started asking questions.  The Dad tried to pull the little girl away.  And I watched as Haylee’s face went from a frown to a smile as she stode up straight and tall and walked over to the little girl and her Dad and said to the Dad. “It is ok.  I was born this way and if she wants to ask questions I would rather her do that than stare.”  My jaw hit the floor.  The Dad said. “I am so sorry.”  Haylee said, “Don’t be sorry, next time just let her ask.”  Haylee then went on to tell the little girl all about her little hand. It made me one proud Mama.

Sometimes we have to explain and other times we just have to be silent.

But please remember if your child sees something different on someone don’t let them stare.  We would rather you ask than stare.

Halloween Fun with a Little Hand

Well as always Halloween was a great time.  Haylee has always loved Halloween because of the candy.   But she also loves it because it is the one time of the year where she can dress up and be anyone she wants to be.

This year she dressed up as a blood vampiress..  She was super cute and brought home a ton of candy.

Haylee has also adapted very well to carrying her trick or treat basket on her little hand so that she can get candy with her big hand.   The only little problem we had this year was her little hand got a little cold.

How was your Halloween?

Sometimes missing fingers cause hurt feelings

Ok so our child was born different.  Ok so our child was born with a limb difference due to Amniotic Band Syndrome or whatever other reason might of caused our children to be different.  But does that give your children any right to be mean to my child?  We did not choose for our children to be born with a missing hand, or fingers, or arm, or leg, or nubs.  We did not choose for everyone to stare out our children and make them feel different.  But would we change anything about our children.. NEVER!

This weekend something happen that really pulled my heart strings.  It was a very hard situation but we made it through it.  We went camping like we do most weekends.  And Haylee decided to go play on the playground.  She was gone for about 10 minutes when she came back trying so hard not to cry.  Of course first look and I could tell something was wrong.  I asked her what was wrong and she said nothing.  I asked her again and she began to cry.

She said Mom they said I was scary and creepy.

THEY SAID WHAT???

WHO SAID THAT????

She said mom don’t go over there making a big deal out of it.  I told her that I will always stick up for her and have her back. She smiled.  She said they all gathered around her looking at her hand and then one child said something and it went from there.  She said it hurt her feelings and they would not play with her.

I explained to her that as much as we want to blame the children for what they say that often times it is not their fault because it is the parents that don’t explain to their children that every one is different one way or another and that just because someone is different does not make them scary or creepy…

I don’t understand how one child could say to another child you are scary and creepy.  How would they like it or react if my daughter told them the same thing.  They would be mad or hurt also… They would want to go have some words with my child if she said something like that to their child…. NO!

But I have to remember.  Haylee has been loaned to me from God because he has huge plans for her and I need to go the direction he points me.

SO I am sure you are wondering how things ended.  Well I told Haylee come on I am sure they just don’t understand.  Let’s go teach them.

So I went back with Haylee and when the first boy started to stare I said.  You know it really is not polite to stare but if you have a question we would be more than happy to answer your questions.  And let me tell you the questions started coming.  We answered all of them and by the time we were done playing Haylee had tons of new friends that were educated on how to react next time they see something different.

So as much as we want to over react and freak out sometimes we have to take a step back and look at the big picture first..

 

Haylee Speaks Out About ABS

Haylee has a message to all ABS children and their parents. Something you want to watch. This is Haylee’s first video of many to come.  Haylee did the recording, script and editing all by herself… Hope you love it.

Haylee tells ABS parents

So I asked Haylee if there was one thing that Haylee could tell parents of kids that have little hands or children born without hands or fingers due to Amniotic Band Syndrome what would it be?

“They can do everything everyone else can do… Except Monkey Bars!”

CARS 2 Giveaway!

Once again Lighting McQueen and his best friend Mater have hit the big screen and to celebrate I’ve got a great little CARS 2 giveaway for you.

1 winner will receive:

CARS 2 t-shirt in youth sizes of S, M, L, XL           CARS 2 set of 3 bumper tickets

CARS 2 temporary tattoo sheet (2 per winner)     CARS 2 puzzle

All you have to do to enter is leave a comment! So start your engine and get to commenting.

Star racecar Lightning McQueen (voice of Owen Wilson) and the incomparable tow truck Mater (voice of Larry the Cable Guy) take their friendship to exciting new places in “Cars 2” when they head overseas to compete in the first-ever World Grand Prix to determine the world’s fastest car.

If you haven’t seen it yet then you’ll want to make sure you do. It’s one summer flick you won’t want to miss.

Winner will be selected by random.org on Friday, July 8th and notified via email!