Amniotic band syndrome affects 1 in 1,200 live births. And it is said to cause  178 in 10,000 miscarriages. And over half will involve the hands, fingers and club foot.  But if you begin to try and dig deeper and find out more  about Amniotic Band Syndrome there is nothing.  We don’t know how many people effected with ABS go on to College and have families.  We don’t know much of anything except for the hard facts.

This breaks my heart to know that there are so many people out there in the world that are effect by Amniotic Band Syndrome and there is really no where to turn.  No support system.  No community of people.  Nothing like that.

It is time to make a change.  It is time to make the world aware of Amniotic Band Syndrome but more importantly it is time to give these Moms, Dads, Families and Friends a place to go to get support.  So that they no longer feel alone  in the world.  WE are not alone.  We are many.. Many more then you would ever imagine.

Haylee has Nubs. Nubs are just one form of ABS. Nubs happen when the growth of fingers is stopped at an early stage of development. Some children have small nubs like Haylee and other children have longer nubs.