Amniotic band syndrome affects 1 in 1,200 live births. And it is said to cause 178 in 10,000 miscarriages. And over half will involve the hands, fingers and club foot. But if you begin to try and dig deeper and find out more about Amniotic Band Syndrome there is nothing. We don’t know how many people effected with ABS go on to College and have families. We don’t know much of anything except for the hard facts.
This breaks my heart to know that there are so many people out there in the world that are effect by Amniotic Band Syndrome and there is really no where to turn. No support system. No community of people. Nothing like that.
It is time to make a change. It is time to make the world aware of Amniotic Band Syndrome but more importantly it is time to give these Moms, Dads, Families and Friends a place to go to get support. So that they no longer feel alone in the world. WE are not alone. We are many.. Many more then you would ever imagine.
I love how the Internet can be used to bring together people in such meaningful ways. I love that you’re spreading the word and bringing people together.
Susan,
Thank you so much for the wonderful comment. We are so passionate about making people aware of Amniotic Band Syndrome but more importantly about making the kids comfortable with themselves and letting the kids know they are not alone out there.
Tricia
Hi
Im also mum to a child with ABS and feel so isolated that there are no support groups in my hometown or any back up etc from proffesional’s ,seems nobody shows any intrest in parents or the childs well being xx
I am a mother of a son with ABS. I only became aware of this issues when my son was born. I do not know what support to give my son when he comes back sad from school because the way kids treat him at . He say that kids don’t want to play with him because of his hand. It breaks my heart that he has to go throuhg this at the age of six.