About

Making People Aware of Amniotic Band Syndrome One Little Hand at a Time.

You feel lost, alone and scared for your child’s future.  You have a million questions running through your head.  How big of an effect will this have on my child’s life? Will my child ever be normal?  Am I the only one with a child like this?  These were all questions I asked myself as I walked out of the hospital with a newborn, missing fingers on her left hand due to Amniotic Band Syndrome.

You are not alone.  Amniotic Band Syndrome effects 1 in 1200 live births.  As you can see by that figure we are many.  Here at Little Hand Big Heart we want to show just how normal your child is.  Take a peek inside our lives and see that we can do anything you can do with just one hand.   We are here to make you aware of Amniotic Band Syndrome One Little Hand at a Time.